Thursday, December 21, 2006

Next Support Group Meeting scheduled for SATURDAY, JANUARY 6th at 1pm

First let me extend a "Happy Holidays" greeting to one and all. I truly hope that you are blessed with better health for the new year.

The first support group meeting of 2007 will be on Saturday, January 6th and will feature LIVE talks and HANDS-ON demonstrations by Complimentary & Alternative Medicine (CAM) practitioners. Don't miss this one! It should be very interesting and may prove beneficial to some members in fine-tuning their overall treatment strategy to achieve greater symptom management and less pain.

Keep checking back here for updates on future topics to be covered. We have lots more valuable information to share. Be sure to invite others who may benefit from the latest news about fibromyalgia and related medical disorders. Also, feel free to make your own posts here on our blog...your questions, comments, suggestions or perhaps some recommendations you think may help someone else. Or, tell us your fibro story. Hey, we want to hear from you.It's easy to post your comments. Try it. You may like it!

Monday, November 13, 2006

Next Support Group Meeting scheduled for SATURDAY, DECEMBER 2nd at 1pm

At our last meeting we viewed PART ONE of the UCSD Chronic Pain Management video series on Fibromyalgia followed by a brief discussion. The group decided to conclude the presentation at our December 2nd meeting. Handouts will be available at the meeting which will summarize this important medical content and bring those who could not attend up-to-date on the medical experts' findings and treatment recommendations.

The regional support group will continue to meet in Education Classrooms 1 & 2 at Princeton Community Hospital.

Our December 2nd meeting will feature "Finding A Doctor Who Is Right For You" and will utilize much of what we've learned about current, evidence-based medical findings and what your primary care physician should be doing in the diagnosis and treatment of your symptoms according to the latest best medical practices for fibromyalgia syndrome.

The first support group meeting of 2007 will be on Saturday, January 6th and will feature LIVE talks and HANDS-ON demonstrations by Complimentary & Alternative Medicine (CAM) practitioners. Don't miss this one! It should be very interesting and may prove beneficial to some members in fine-tuning their overall treatment strategy to achieve greater symptom management and less pain.

Keep checking back here for updates on future topics to be covered. We have lots more valuable information to share. Be sure to invite others who may benefit from the latest news about fibromyalgia and related medical disorders.

Also, feel free to make your own posts here on our blog...your questions, comments, suggestions or perhaps some recommendations you think may help someone else. Or, tell us your fibro story. Hey, we want to hear from you.

It's easy to post your comments. Try it. You may like it!

Saturday, October 14, 2006

Next Support Group Meeting scheduled for SATURDAY, NOVEMBER 4th at 1pm

The next regional fibromyalgia support group will meet on Saturday, November 4th at 1:00 p.m. in Education Classrooms 1 & 2 at Princeton Community Hospital. I've been assured by the PCH Education Dept. staff that we will not be moved again this year or next. The 2007 schedule will remain the FIRST SATURDAY of EACH MONTH.

Our October 7th meeting's content had to be postponed for a second time. Unfortunately, that meeting had to be moved to a room in which there was no audio-video equipment. So, the important content planned for the last two meetings is now scheduled for the upcoming session on November 4th.

By the way, I would like to take this opportunity to publically thank Debby Ramella for stepping up to lead our last support group session. A big thanks also to Katie Robinett for her help in getting the materials to the meeting in my absence. I understand from first-hand reports that the meeting went well even under the difficult circumstance that was unexpectedly encountered just prior to meeting time which required relocation to a much smaller, unequipped room.

Way to go, Debby! Again, many thanks.


The upcoming meeting will begin with a brief synopsis of the content of past meetings. Then, a multi-media presentation will feature the July 6, 2006 University of California at San Diego (UCSD)Chronic Pain Management Roundtable. A panel of multi-disciplinary medical experts knowledgeable in the practical treatment of fibromyalgia patients present how doctors should approach and treat fibromyalgia syndrome patients. This would be a good meeting to bring your doctor along with you or any other health care practitioner you can get to attend.

Our December 2nd meeting will feature "Finding A Doctor Who Is Right For You" and will utilize much of what we've learned about current, evidence-based medical findings and what your primary care physician should be doing in diagnosis and treatment of your symptoms according to the latest findings and best practices.

Keep checking back here for updates on future topics to be covered. We have lots more valuable information to share. Be sure to invite others who may benefit from the latest news about fibromyalgia and related medical disorders.

Wednesday, September 06, 2006

Next support group meeting scheduled for SATURDAY, OCTOBER 7TH

Due to the Labor Day holiday which prevented a larger turn-out on September 2nd, the lengthy, but important presentation planned was postponed until our October 7th meeting to be held at Princeton Community Hospital, Education Classrooms 1 &2.

The upcoming meeting will begin with a brief synopsis of the content of past meetings. Then, a multi-media presentation will feature the July 6, 2006 University of California at San Diego (UCSD) Pain Management Roundtable. A panel of multi-disciplinary medical experts knowledgeable in the practical treatment of fibromyalgia patients present how doctors should approach and treat fibromyalgia syndrome patients. This would be a good meeting to bring your doctor along with you.

Our November 4th meeting will feature "Finding A Doctor Who Is Right For You" and will utilize much of what we've learned about current, evidence-based medical findings and what your primary care physician should be doing in diagnosis and treatment of your symptoms.

Keep checking back here for updates on future topics to be covered. We have lots more valuable information to share. Be sure to invite others who may benefit from the latest news about fibromyalgia and related medical disorders.

Sunday, August 06, 2006

Next Support Group Meeting September 2nd

Our next support group meeting is scheduled for Saturday, September 2, 2006 beginning at 1:00 p.m. in Princeton Community Hospital Education Classrooms 1&2.

I know it's the same day as the WVU vs. Marshall football game. We'll finish well before kick-off...
I promise! Hey, I want to watch the game too!

The upcoming meeting will begin with a brief synopsis of the content of past meetings. Then, a multi-media presentation will feature the July 6, 2006 University of California at San Diego (UCSD) Pain Management Roundtable. A panel of multi-disciplinary medical experts knowledgeable in the practical treatment of fibromyalgia patients present how doctors should approach and treat fibromyalgia syndrome patients. This would be a good meeting to bring your doctor along with you.

Our October 7th meeting will feature "Finding A Doctor Who Is Right For You" and will utilize much of what we've learned about current, evidence-based medical findings.

Keep checking back here for updates on future topics to be covered. We have lots more valuable information to share. Be sure to invite others who may benefit from the latest news about fibromyalgia and related medical disorders.

Different Points of View...


Some of our members caught from different points of view in the same photo. We express different points of view intellectually as well as photographically.

August 5th Support Group Meeting Well Attended

Our August 5th support group meeting was well attended. We reviewed important reference information about fibromyalgia and current clinical treatment options as presented by Drs. Pfister and Linton of WVU School of Medicine, Charleston division. It was time well spent for those seeking answers to the management of fibromyalgia syndrome.

Wednesday, July 26, 2006

National Fibromyalgia Association Official Support Group Listing for WV

If you haven't checked out the NFA's web site, just click on the link above. From our listing page, you can visit each of the other pages which are filled with helpful information and links to other sites about fibromyalgia. It is highly recommended.

Sunday, July 02, 2006

NEXT MEETING AUGUST 5th at PCH, 1:00 p.m.- 2:30 p.m.

The next support group meeting will be held Saturday, August 5th at the Princeton Community Hospital Education Classrooms 1&2 at 1:00 p.m.- 2:30 p.m. A video presentation of the Spring 2006 Fibromyalgia 101 Seminar held in Charleston,WV will be presented. The seminar was sponsored jointly by CAMC Health Information Institute, the Robert C. Byrd Health Sciences Center and the WVU School of Medicine. Featured presenters will be Drs. Alfred K. Phister and John Linton. Audience questions are answered at the end of the presentation concerning various aspects of fibromyalgia treatment plans. Participation in the live Q&A session is encouraged where specific treatment options will be discussed relative to patient's own experiences.

Monday, May 15, 2006

Friday, May 12th was National Fibromyalgia Awareness Day. CVS Drug Stores across the country participated with the National Fibromyalgia Association in setting up display tables and providing free information via brochures and other printed materials about fibromyalgia syndrome.

Joe Damewood, Group Leader of VHFA's local support group and John Smallwood, Manager of CVS located on Stafford Drive in Princeton, WV are shown in the photograph along with the store and the official poster advertising the occasion.



New research now documents the physical basis of fibromyalgia pain through cutting-edge technologies as functional MRI and brain wave studies.